Declare Your Care Campaign
CQC are encouraging people to share their experiences of care – good or bad, as this information supports their monitoring and inspection activity.
Everyone can play a part in improving care by directly giving feedback to services and sharing information and experiences.
Key findings
CQC research reveals that people with a learning disability are more likely to regret not complaining about poor care than those without.
The lack of information, about a health condition or treatment options not being well explained, are the main reasons for people with a learning disability or their carer to want to raise a concern.
People with learning disabilities are also twice as likely to have concerns about maternity services and mental health services than people without a learning disability.
The research looked at people in England who have had experience of health or social care in the last 5 years, either as a patient or carer.
- Half (50%) of adults with learning disabilities or their carers said that they have wanted to raise a complaint about the lack of information about their care or treatment.
- People with learning disabilities are 17% more likely to regret not complaining about poor care than people without learning difficulties.
- People with learning disabilities are twice as likely to have concerns about maternity services and mental health services than people without learning disabilities.
We’ll also be drawing on the findings of the initiative led by NHS England: Ask, Listen, Do and results of their survey of nearly 1,300 people. Their survey found that:
- Nine out of ten people said that they had wanted to raise a concern or make a complaint at some time
- Two of three people said they sometimes or never knew how to do this
- Seven out of ten people said that they did not feel that their complaint(s) had changed the way the organisation supports people as a result
